Patients attending the BC Women’s Recurrent Pregnancy Loss Clinic with RPL have the opportunity to participate in the Prospective Recurrent Pregnancy Loss Registry (ProRPL Registry).
Data that will be collected and stored in the registry include patients’ demographic information and personal, medical, obstetric, gynecological, surgical, and family history; this is all in the intake questionnaire sent to patients prior to their initial visit at the clinic. Depression, anxiety and stress are also assessed using Patient Health Quality-9 (PHQ-9), Generalized Anxiety Disorder-7 (GAD-7) and Perceived Stress Scale (PSS) scores respectively. External medical records from prior pregnancies or gynecological procedures as well as consultation notes from visits at the RPL Clinic, physical examination information, results of laboratory investigations and prescribed treatment will also be included in the registry. The prospective nature of the registry is achieved through follow-up questionnaires that update results from investigations, treatments, and ongoing/future pregnancies.
The goal of the ProRPL Registry is to develop and maintain a prospective database that will help fuel future research in the field of RPL. As about 50% of RPL cases do not have a clear explanation, it is important to further explore the causes, treatment and long-term prognosis of the condition.